Facial Palsy is lonely, find someone else who
has Facial Palsy
People with Facial Palsy
One of the best things about having facial palsy is the amount of
friends I have made because of it. It's no longer a lonely world where no one else understands the pain
of growing up with a wonky smile, these days I feel like I am a member of a very special club, I have made
friends from all over the world who understand exactly how I feel. We all have different degrees of
facial palsy, but we all share the common understanding of what a potentially cruel beginning it is in life to
be unable to smile normally, but thankfully, most of the people I
have met have adapted brilliantly, and being unable to smile normally has not held us back. There
are a couple of groups on Facebook for people with facial palsy or parents of children with facial
paralysis and it's good to know other people who are in a similar situation to talk to. There is a
new group called Courage to Smile which has been set up recently and it is growing quite
If you have facial palsy or are a parent of a
child with facial paralysis, please feel free to add me on Facebook as a friend.
Facial Palsy is very rare and hence can be
quite lonely for people living with it and their families. Information is not readily available due to there
often being no straightforward reason for what causes it, there are many different reasons for its occurrence and
doctors are often vague with regards to prognosis.
Support groups on
the internet are as follows: -
Paralysis - Yahoo
friends - a Facebook
Smile - a Facebook
Below is a list of locations in the world where
we know people with Facial Palsy can be found, if you want to contact any of these people then
please contact me and I will try and help you connect with them.
If you want to be added to this list please let me know.
Locations of people with Facial
Birkenhead, nr Liverpool
US - Auburn, Indiana
Facial Palsy in
Recently, I have met a lot of new people who
have facial palsy, and this is largely due to Shelby
Dressel, who has appeared on American Idol in
2010. It is wonderful that Shelby has had the courage to appear in front of the viewing public of the United
States, I know how difficult that must be for anyone with facial palsy, and I am so grateful to her for raising
awareness of such an often lonely form of paralysis.
John Hayes who is my local Conservative MP in
2010 also has facial paralysis caused by brain injury I believe.
Other famous people with facial paralysis are
Milo Ventimiglia and Sylvester Stallone. There is also some debate about whether Elvis Presley suffered from
mild facial palsy, looking at childhood pictures of him, I think he did have it.