The resources for people with facial palsy are improving every day, which is wonderful news! I started this website several years ago and it’s been amazing all the people I have now met with facial palsy, if you consider that when I set up the website I had never met anyone else with the condition, apart from my Uncle Harry who had facial palsy after a stroke. Continue reading
Today I received a special delivery letter from Addenbrookes Hospital which was quite exciting because I have been waiting to hear back from them, but I didn’t expect such a fast response! A couple of weeks ago I requested copies of any records they might still have about my facial palsy, my mum has told me all that she knew and they didn’t really add a lot to this, but it was nice to see it all written down. Unfortunately a lot of it was very difficult to read because it was scans of micro-fiche, but I got the general picture. I am going to attempt to transcribe!
Just wanted to give a brief update on what I have been up to over the summer so far. We kicked off the summer with a wonderful holiday to Dalyan in Turkey. I am so glad we went to Turkey because the weather here in the UK has been pretty miserable really! We hadn’t been abroad for over ten years on a proper family beach holiday and I had forgotten how much good it does you! I have to say a special thank you to Anatolian Sky because the way they looked after us was excellent, we couldn’t have asked for more from a Tour Operator, we’d definitely recommend them for holidays in Turkey and will be traveling with them again.
Someone has some questions about CULLP (congenital unilateral lower lip paralysis). I have tried Googling for this information with little success so am posting to my blog to see if anyone can help with answers. Continue reading
Apologies to people following my blog because I haven’t updated it until now. Things got really hairy just after my last post and I ended up having to have the gold weight removed. You can see in the image on the left (taken 22 February 2011) that things got worse and I ended up with alien eye! I have never felt such horrendous discomfort in my life! It seems however that I was just one of the unlucky ones and I had an allergic reaction to the gold. I have talked to many people who absolutely LOVE their gold weight so please don’t let this put you off trying the surgery. Continue reading
Well today has been eventful. Since Saturday my eye has got progressively worse, it went from droopy eyelid to virtually closed-up eyelid and then to Karen “no see” eye!!! I am 7 weeks post gold weight eyelid surgery and up until now the eyelid was droopy but not swollen. Suddenly I find myself not able to drive and only able to type on my laptop because I can look “down” at the keyboard. I managed to get an appointment to see the duty doctor at the hospital and was promptly taken in for the routine eye test to which I objected! Continue reading
Well I have been to see my doctor, I really thought she was going to say I was talking nonsense but she was great. She said she could see what I meant about the dips in my face and she would refer me to a plastic surgeon so they can see what they can do for me. I feel so much happier now that I know it’s not all in my head, haha. My lovely husband of course is going to say I look fine but I know that people have started mentioning it so it must be getting more noticeable as I get older. Continue reading
I know I am being really impatient and it being the month of January isn’t helping much, but I am feeling quite depressed since my surgery in December. I am fed up now with my eyelid hanging down so low and the swelling not going down fast enough. Continue reading
I grew up with really no support from the NHS. I was never given eye drops or given any helpful ideas on how to manage with an eye that doesn’t close properly. When I became an adult I asked for help but the doctor just said you can’t repair nerves, why didn’t he realise there was more to be done than just tell me this was forever? What about eye drops? What about taping the eye down at night to give it some relief? Continue reading