Testing out Twitter

So I don’t really use Twitter that much, I am simply a woman of far too many words and I find it really difficult to say what I want to say in such a small space!!  So I decided to … Continue reading

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Feeling a little happier about my Facial Palsy today

Well I have been to see my doctor, I really thought she was going to say I was talking nonsense but she was great.  She said she could see what I meant about the dips in my face and she … Continue reading

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Feeling a bit depressed and down post gold weight surgery

I know I am being really impatient and it being the month of January isn’t helping much, but I am feeling quite depressed since my surgery in December.  I am fed up now with my eyelid hanging down so low … Continue reading

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Facial Palsy surgery in New York

I came across this great story on the internet today about a guy called Jeffrey who has facial palsy and has had surgery.  You can see his story on this video (click the link below): – Jeffrey’s Facial Palsy story … Continue reading

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Keeping a facial palsy diary

Talking to some mums of children with facial palsy the other day, I suggested that they keep a diary detailing all the questions they have asked and had answered by the medical profession.  As time passes you tend to forget … Continue reading

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The NHS and Facial Paralysis – talking to your GP

I grew up with really no support from the NHS.  I was never given eye drops or given any helpful ideas on how to manage with an eye that doesn’t close properly.  When I became an adult I asked for … Continue reading

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Gold weight eyelid operation for Facial Paralysis

Well this week I put my brave head on and finally went for the gold weight surgery on my eyelid.  Today (48 hours later) I am still bruised but the swelling is going down slowly. When I previously arranged the … Continue reading

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Shelby Dressel going back for more American Idol

Shelby Dressel worked wonders for raising awareness of Facial Paralysis last year in American Idol and was the inspiration behind the Courage to Smile group on Facebook. This year Shelby has taken her beautiful singing voice back to Nashville and … Continue reading

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Different kinds of facial paralysis

I am finding more and more people online have different degrees of facial paralysis and for many different reasons.  Some people’s facial palsy is caused by birth trauma, others by brain tumours, some by Moebius Syndrome, some by Bell’s Palsy, … Continue reading

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Moebius Syndrome – smiling for all the family

Moebius syndrome is a rare neurological syndrome affecting the facial nerves leaving people unable to move their faces to smile, suck, frown, grimace or blink.  Other problems are also caused by Moebius syndrome and you can find more information here. A … Continue reading

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