A journey back to 1969 and my early years with facial palsy

Posted on November 2, 2011 by Karen

I requested copies of any records Addenbrookes Hospital might still have about my facial palsy and they arrived today. Continue reading →

Posted in Facial Palsy stuff | Tagged , , , , , | Leave a comment

A great summer with great friends

Posted on August 16, 2011 by Karen

An update on our summer so far, our holiday in Dalyan and the Courage to Smile meet-up in Manchester that took place at the weekend. Continue reading →

Posted in Facial Palsy stuff, General stuff | Tagged , , , , | Leave a comment

Kune Kune Piglets for Sale

Posted on July 25, 2011 by Karen

On Friday I went over to meet some rather cute little animals called Kune Kune pigs. These friendly creatures were in danger of extinction back in the 1980s and now thanks to a breeding programme in New Zealand and the UK, they are no longer at risk. Continue reading →

Posted in General stuff | Tagged , | Leave a comment

Facial Palsy, CHARGE Syndrome and some questions

Posted on July 19, 2011 by Karen

I’m a little puzzled right now about my own facial palsy. We were told it was probably due to birth trauma because I was a facial presentation. Continue reading →

Posted in Facial Palsy stuff | Leave a comment

Some questions about CULLP (congenital unilateral lower lip paralysis)

Posted on May 31, 2011 by Karen

Someone has some questions about CULLP (congenital unilateral lower lip paralysis). I have tried Googling for this information with little success so am posting to my blog to see if anyone can help with answers. Continue reading →

Posted in Facial Palsy stuff | Tagged , , , | Leave a comment

Woman left with facial paralysis gets £6m after facelift surgery goes wrong

Posted on May 24, 2011 by Karen

Reading about Penny Johnson who was yesterday awarded £6 million pounds compensation made me feel positively sick. Continue reading →

Posted in Facial Palsy stuff | Tagged , , , , | Leave a comment

New Facial Palsy Website & Group Meeting

Posted on May 10, 2011 by Karen

Saturday 7th May was quite a magical day for me. 12 weeks ago some UK members of the Courage to Smile group on Facebook decided to arrange a meet-up and this happened last weekend. Meeting people for the very first time who also have facial palsy was quite surreal.. Continue reading →

Posted in Facial Palsy stuff | Tagged , , | 4 Comments

Update post eyelid gold weight surgery complications

Posted on April 22, 2011 by Karen

Apologies to people following my blog because I haven’t updated it until now.  Things got really hairy just after my last post and I ended up having to have the gold weight removed.  You can see in the image on … Continue reading →

Posted in Facial Palsy stuff | Tagged , , , , , | 2 Comments

Complications with Gold Weight in Eyelid

Posted on February 15, 2011 by Karen

Well today has been eventful.  Since Saturday my eye has got progressively worse, it went from droopy eyelid to virtually closed-up eyelid and then to Karen “no see” eye!!!  I am 7 weeks post gold weight eyelid surgery and up … Continue reading →

Posted in Facial Palsy stuff | Tagged , , , , | 1 Comment

Olu Deniz family holidays

Posted on February 3, 2011 by Karen

So I think I’ve found the place where I want to go on holiday this year.  Olu Deniz holidays look out of this world, I just want to leap into that blue lagoon right now! I’ve been looking at Olu … Continue reading →

Posted in General stuff | Tagged , , | 1 Comment